Sunday, September 20, 2015

A Georgia Update

Georgia had an appointment with her orthopedic surgeon the week before school began and I just realized that I haven't written an update about her progress.  

Quick summary:  Georgia was born with a congenital birth defect called Amniotic Band Syndrome.  ABS can be quite severe and even fatal, but in Georgia's case, the syndrome presented itself as one band wrapped around her right ankle.  It seemed simple enough (after the original diagnosis of immobility was disputed) at the beginning of the journey:  Georgia would grow and get a healthy and then have surgery at six months to remove the band.  That happened.  Then as Georgia grew, we noticed that she couldn't put her right heel down when she stood up/walked.  Georgia was tippy-toe walking and her foot was malformed and her hip and back were being negatively affected as a result.  Surgery number two opened up her ankle, scar tissue was removed and her muscle and achilleas tendons were cut/stretched.  And then for a few months, Georgia really was immobile and confined to a wheelchair and endless casts but when it was all over, Georgia was able to put her entire right foot on the ground.  The surgery was a huge success.  But there was still another surgery in her future.  The orthopedist recommended that when Georgia reached puberty, that a third surgery was needed to insert steel screws into her good leg to stunt the growth and give her shorter leg the chance to catch up and even out.

You can read more about that surgery HERE and HERE

So a few weeks ago, we went back to the hospital to see if that third surgery had actually worked.  We got to Children's at 7am and were sent directly to xrays where Georgia had a body scan and some xrays of her feet.

And then we got the results...

Georgia's almost one-inch leg-length discrepancy is now down to a couple of centimeters!  So hurray!  And she is able to throw away the shoe lifts that she has worn since she was six years old!

There was some concern at the last doctor's visit in February that the bones in her right foot were at odd angles, the fear being that she was getting bunions that would eventually need their own surgery, but her foot xrays were completely normal.  

Apparently that odd-ly shaped foot is just that, odd.  

Obviously a trait inherited from her father's family :)

hee hee

Georgia is thrilled.  Gordy and I are thrilled.  The doctor is thrilled (ok, he was more pleased but that's only because he's a surgeon and surgeons always think they can fix anything.)  The outcome is exactly what we hoped for at the beginning of this journey.

We'll keep checking back in with the surgeon twice a year for the next few years but Georgia will only have to do the scan-o-grams every other visit.  


Anonymous said...

This is a happy new. Congratulations.

Anonymous said...

Woo Hoo Georgia!
We are all so glad to hear the great news.
C and D

Tara said...

Wonderful news! Congrats Georgia (& parents) - what a journey! Love to you all.

Martha said...

Thank you, Anonymous, C&D and Tara!

Tara - Georgia's leg reminds me a lot of yours (although I remember that you are no longer sporting your ace hardware!) :)

carolina rico said...

First time here! And love to be here with such happy news!! I can imagine how thrilled you all most feel!
Your girls are beautiful and lovd your writing! Will be back!

Martha said...

Welcome Carolina!

Thanks so much for stopping by and for leaving a comment! -Martha

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